Measuring Different Types of Relationship Styles in Psychosis

Division of Psychology and Mental Health
2nd Floor, Zochonis Building
The University of Manchester
Brunswick Street
Manchester
M13 9PL

Participant Information Sheet

Measuring Different Types of Relationship Styles in Psychosis

You are being invited to take part in a research study developing a questionnaire to measure different types of relationship styles in psychosis. Before you decide whether or not you would like to take part in the study, please read the following information carefully so that you can understand what taking part would involve for you. Then click the button at the bottom of the page to continue. If you have any questions or queries about taking part in the study, please contact the principal investigator, Catherine Pollard (catherine.pollard@postgrad.manchester.ac.uk). You do not have to make a decision straight away, so if you have any doubts or feel unsure please take some time to think it over. 

What is the study about?

Our early relationships have been linked to the development of psychosis, a mental health problem that means people interpret things differently from those around them. Psychosis involves experiences such as hallucinations, where a person hears, sees and in some cases feels, smells or tastes things that are not there; or delusions, where a person has strong beliefs that are not shared by others.

When people are young, they develop a sense of how they relate to themselves, others and the world. This includes how others relate to them. Some people grow up seeing their parent/guardian as fearful. Research suggests that when these young people grow up they are more likely to report hearing voices and feel paranoid. However, it is not clear how this happens. 

At the moment, it is difficult to understand why these people are more likely to hear voices and feel paranoid. Therefore, more research needs to be done. We aim to develop a questionnaire that measures whether people have grown up feeling scared of their parent/guardian so that we can use this in research to help us understand the link between feeling fearful in early relationships and the development of psychosis. 

This study will not directly offer you any benefit, but the study addresses a gap in psychosis research. Our work will help to understand the development of unusual experiences and help us develop more treatments for distressing experiences. 

Why have I been invited to take part?

  • have a self-reported diagnosis of psychosis, such as schizophrenia, schizophreniform disorder, schizoaffective disorder, delusional disorder, psychosis NOS, and so on
    •  OR received antipsychotic medication for experiences related to psychosis 
    •  OR received treatment in a mental health unit / hospital for experiences related to psychosis 
    •  OR received input from community mental health team or early intervention service for experiences related to psychosis 
    • OR received therapeutic input (e.g. CBT therapist, psychologist) for experiences related to psychosis, such as hearing voices, visual hallucinations, paranoid ideation or unusual beliefs. 
  •  are confident with using the English language 

Do I have to take part?

You do not have to take part. If you decide you would like to, and you continue to the survey, you can also stop at any point throughout the survey if you change your mind. You can withdraw from the study at any time, without giving your reasons.

If you decide you don’t want to continue with the survey after starting it, that’s fine; however, we won’t be able to remove the data you have already given us because it is completely anonymous and we won’t know which data is yours.

Who can participate?

Due to the nature of this study we are asking everyone some questions in order to determine whether there is any reason they should not participate. For example, if you have no experience of psychosis, you would not be able to take part. 

What will I be asked to do if I take part?

If you agree to take part, you will be directed to an on-line survey. There are 8 sections to this survey. We expect that completing this survey will take up to 30 minutes.

This survey will ask you questions related to early experiences of trauma, questions about your relationships, about unusual experiences, and about any distress. Examples of questions that may be asked are, ‘Have you ever deliberately been attacked that severely by someone with whom you were very close’ and ‘Have you ever been in a major automobile, boat, motorcycle, plane, train, or industrial accident that resulted significant loss of personal property, serious injury to self, or other, the death of a significant other, or the fear of your own death’. Some of the questions in this survey may be very sensitive for you. These include items on childhood bullying, abuse, stressful events, and symptom experiences.

Once you have started the questionnaires, you need to finish it in one sitting as there is no facility for saving and returning at a later date.

At the end of the survey you will be asked if you are happy to provide your email address to be contacted in two weeks time to complete just one of the sections again. We expect that completing this second survey will take up to ten minutes.

What are the possible disadvantages and risks of taking part?

We do not anticipate that your participation will cause you distress. However, if you do experience distress, you may discontinue the survey at any time. At the bottom of this page, and on completion of the survey, there is a list of contact details of various support services that you may contact if you experience distress as a result of participating. In addition, the contact details of the researcher are provided and you can contact the researcher in working hours. If you experience distress out of hours please attend A&E or contact your local crisis team.

What are the possible benefits of taking part?

Taking part in this research is unlikely to help you directly. However, completing the survey may provide you with an opportunity to reflect on your feelings and experiences. Research findings obtained during the study will also help us to better understand the factors involved in psychosis and may potentially be used to improve psychological treatments for people with distressing experiences.

If you would like me to email you a summary of the findings when the study is complete, please fill in your email address in the box provided at the end of the survey, and tick the box ‘summary of findings’.

Reimbursement for my time

Whilst there will be no financial reimbursement, you will have the opportunity to enter your details into a prize draw. A prize of £70 for first prize, £20 for second prize and £10 for third prize of high street vouchers will be drawn for 3 entrants as a token of appreciation. If you would like to be entered into the prize draw we will ask you to provide your email address at the end of the survey and tick ‘prize draw’.

The first 22 participants who, after two weeks, complete the single questionnaire again are guaranteed to receive a £5 prize of high street vouchers. If you would like to be contacted by the researcher in two weeks time with the link to complete the questionnaire we will ask you to provide your email address.

What will happen if I don’t want to carry on with the study?

You can withdraw from the study at any time. However, as your data is anonymised, it cannot be withdrawn from the database. We will therefore keep the data you have entered up to your withdrawal.

Will my taking part in the study be kept confidential?

Yes, in accordance with the Data Protection Act of 1998, all information about you will be handled in strict confidence. The data collected during the study will be stored in a secure place and only researchers will have access to it. Data files stored on the computer will be password protected. No names or addresses will be included and participants will be identified only by numbers in any computerised data files used in the analysis of the results. The data you provide will be kept anonymously for a maximum of 10 years on the University’s secure server. It will then be permanently deleted.

If you provide your email address so that you can be entered in to the prize draw, to be contacted in two weeks to complete one of the questionnaires again, or so that we can send you a summary of the findings, then this will be kept in a secure, password protected file. This information will not be attached to the information you provide on the survey and so the data collected will remain anonymous. 

What will happen to the results of the research study?

The results of the research will be included in a report that will be submitted for examination by the University of Manchester. The results may also be published within an academic journal, and may be presented at conferences. There will be no personal information about any of the people who participate within any of these reports or presentations. The results from this research may be used in future research by members of the research team and may be shared anonymously with other researchers.

Who is involved in this research?

The chief investigator of this research is Catherine Pollard: The University of Manchester, Division of Psychology and Mental Health, 2nd Floor, Zochonis Building, Brunswick Street, Manchester, M13 9PL (Catherine.pollard@postgrad.manchester.ac.uk; Ph: 0161 306 0400)

The research supervisor’s details are:

Dr Katherine Berry (Katherine.Berry@manchester.ac.uk; Ph: 0161 306 0400) and Dr Sandra Bucci (Sandra.Bucci@manchester.ac.uk;Ph: 0161 306 0400)

Where can I obtain further information if I need it?

Should you have any questions regarding this study, please contact Catherine Pollard at catherine.pollard@postgrad.manchester.ac.uk.

What if I have questions or want to complain about this study?

If you have any questions or concerns about this study, please contact the researchers who will do their best to answer your questions. If you wish to make a complaint regarding the study please contact the University Research Practice and Governance Coordinator on 0161 275 7583 or 0161 275 8093 or send an email to research.complaints@manchester.ac.uk 

Who has approved the study?

The University of Manchester Ethics Committee.

The following is a list of services you may contact for support, advice, or in emergency:

Turn2me.org

This is a web space for people to share, discuss and offload personal problems, find support and get useful information.

www.turn2me.org

Sane Line

0845 767 8000
Offering specialist mental health emotional support 6-11pm every day.
You can also email through their website.
www.sane.org.uk

Rethink

0300 5000 927

Open Mon-Fri 10am - 2pm. Rethink provide support, advice and signposting for carers.

http://www.rethink.org/

Hearing Voices Network

0114 271 8210

nhvn@hotmail.co.uk

Peer support network

Samaritans

0845 7909090

jo@samaritans.org

Open 24 hours a day. They offer confidential emotional support by telephone, email, text, letter and face to face.

NHS Direct

111

Open 24 hours a day. They provide health advice and information.

Thank you for reading this information sheet.

Contacts for further information:

The chief investigator of this research is Catherine Pollard:

Catherine Pollard: The University of Manchester, Division of Psychology and Mental Health, 2nd Floor, Zochonis Building, Brunswick Street, Manchester, M13 9PL (Catherine.pollard@postgrad.manchester.ac.uk; Ph: 0161 306 0400)

The research supervisor’s details are:

Dr Katherine Berry (Katherine.Berry@manchester.ac.uk; Ph: 0161 306 0400) and Dr Sandra Bucci (Sandra.Bucci@manchester.ac.uk;Ph: 0161 306 0400)

Click here to complete the consent form

ClinPsyD, Second Floor Zochonis Building, Brunswick Street, Manchester M13 9PL
Tel: +44 (0)161 306 0400
Fax: +44 (0)161 306 0406